Thursday, August 21, 2014

People Have No Clue

People have no clue how hard it is to be diagnosed with a life altering, life threatening chronic illness. They pass judgement on those who battle daily. They care not to support and when they do it comes with stipulations of a returned favor.

People have no clue the fear that a person is overcome with when the doctor says, "I'm sorry, you have Systemic Lupus  erythematosus. It's going to affect your body in so many different ways and can potentially be the killer of several organs. You will have to modify and be on medications for the rest of your life" The sadness.. the fear...the anxiety....the uncertainty. ...People have no clue.....

People have no clue how difficult it is to modify simple tasks like brushing your teeth...opening a door..combing your own hair.... People have no clue of what is done each moment to simply look alive instead of looking like the walking dead.

People have no clue.. the loneliness... the depression... the desire to do when your body says don't even try it.

People have no clue... it's our job as warriors to inform and educate but we can't make people understand.  We can only spread awareness and attempt to live in modification of what we remember as our normal.

People have no clue and honestly it doesn't matter if they do or dont....as long as you, the warrior understands and tap into your strength to live fully in spite of lupus everyday.

People have no clue.....and at this point it doesn't even matter.

~Lupus In Color~

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