Friday, May 9, 2014

Flight of the Butterflies Alicia Jones

LUPUS IN COLOR PRESENTS
FLIGHT OF THE BUTTERFLIES

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don't understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories every Friday in the month of May for lupus awareness month.

Flight of the Butterflies Begins.....

Week 2
May 9, 2014



Alicia Jones

Hi my name is Alicia I am 38 yrs old.  A few years ago I was telling my doctor I had pain in my knees and she brushed it off for awhile. One year later she told me I had an autoimmune disease and referred me to a rheumatologist. I was then told I had SLE Lupus and Rheumatoid Arthritis. Overnight my medicines turned into about a 20 pill a day regimen. I was hospitalized because I was having breathing problems and found out my lungs were inflamed and it caused scar tissue. My pulmonologist is talking about a lung transplant, my rheumatologist has me doing infusions because she said all medicine options have been exhausted and are not working.


I didn't know anything about lupus except what was learned from your wonderful page or google. I suffer severe depression, pain, and memory loss.

My family and friends have accused me of exaggerating and sometimes I feel like I have no support.

I am SCARED,and LONELY but thank you for Lupus in Color on Facebook.

Lupus In Color is excited to present Alicia's story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Alicia Jones.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE ALICIA'S FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

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