At least it's not cancer.... Is what I heard from a woman today. As if Lupus was a less of a disease that destroys the body and the person.
At least it's not cancer...she said... As if Lupus was not as important to fundraiser and find a cure for.
At least it's not cancer....were the words she had the audacity to utter in my presence. "Oh," she stated, "at least you won't lose your hair or have to go to chemotherapy." As if the monthly Lupus treatments were easier and dint cause horrible side effects.
At least it's just Lupus...she said... As if having Lupus was just that easy to battle day to day.
At least it's not cancer...she said... As if Lupus was not as important to fundraiser and find a cure for.
At least it's not cancer....were the words she had the audacity to utter in my presence. "Oh," she stated, "at least you won't lose your hair or have to go to chemotherapy." As if the monthly Lupus treatments were easier and dint cause horrible side effects.
At least it's just Lupus...she said... As if having Lupus was just that easy to battle day to day.
Finally I stated, " at least I don't have ignorance like you. Do you even know what Lupus is and what it does to the ones battling it? No don't answer that because I already know the answer, for if you KNEW you wouldn't say, at least it's not cancer. I know you mean well, but it is increasingly difficult to educate you about this most important disease if you insist in talking to me about what it's not. No it's not cancer and for some people, lupus is a mild disease. But for others, it may cause severe problems. Even if our lupus symptoms are mild, it is a serious disease that needs constant monitoring and treatment. It can harm your organs and put your life at risk if untreated. So no it's not cancer, it's lupus. Learn about, ask me and don't assume it's not a life altering possible life threatening disease."
~Lupus In Color~
Yes, thank you Jesus.
ReplyDeletePeople are so ignorant..you do go through chemo with Lupus!! I have been on chemo and will many many times in my life. My life hurts. It's torture most days. Typing this wears me out. Screw them. You said the right thing back to her. (I know this is a late response but I saw it bc someone said this to me &I googled)
ReplyDeletePeople are so ignorant..you do go through chemo with Lupus!! I have been on chemo and will many many times in my life. My life hurts. It's torture most days. Typing this wears me out. Screw them. You said the right thing back to her. (I know this is a late response but I saw it bc someone said this to me &I googled)
ReplyDeleteI would assume sometimes cancer would even b less painful, and at least they are focused on a cure for most cancers along w plenty of money flooding in for there research, lupus is such a secret that when I say I have lupus ppl just look at me like so... I've never heard of it so it must not b that bad! I'd beg to differ I'm 35 I've had numerous surgeries including loosing a kidney over " just an infection" I hurt constantly and forgetting stuff everyday, I never know what joint is gonna dislocate or where my pain will be! Sometimes I stay awake because I'm having a alright day and I'm afraid if I go to sleep I'll wake up like I was last week, crippled confined to my bed , so before you judge us lupie's learn a little about our lives and understand what it's like to feel like a hole different. Person lives inside your body and my outside body is allergic to my inside body, pretty much, not to mention she beats me with sledge hammers from the inside, or I swear there's voodoo close by and some days I wish it would all just end, I make myself get up even if it's just to watch my son get on the bus I've collapsed at the door and crawled back to bed. I've called ppl 20 min away just to come get me something to drink and I've never heard them say one bad thing, when I was or am up I can run circles around anyone I know, it's paying for it in the next 24/48! I have a heart big as a full moon and I'm starting to hav a real problem w ppl that take my kindness for granted , I think it's selfish to ask unless it's a must, don't ask me to tie your shoes when I'm the one w a broke back your just lazy! I still would not put this on my worst, but if I were a bird I know exactly who I'd shit on! And take that you gotta have will power and buy you a box of exlax eat them all and tell yourself you don't need to shit, there's your will power!!!! Thanks god bless
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